• 1 in 68 Kenyans grapples with autism, ADHD and intellectual disabilities
• Creating awareness helps turn stigma into understanding and support
Image: PEXELS
It's a serene morning, around 8am, in the heart of Nairobi's Kawangware estates. The air is filled with anticipation as we step into the world of Bahati, a 13-year-old boy, and his mother, Carol Emoyo.
Bahati, with his infectious smile, embarks on his day, guided by the unwavering support of his mother. Their home, a sanctuary of love and resilience, echoes with laughter and joy. Carol, a picture of boundless patience and unconditional love, navigates the daily challenges of raising a neurodiverse child with grace.
Their cosy home is adorned with colourful art projects, a testament to Bahati's unique creativity. Every interactive game becomes a stepping stone for social growth, as Carol ensures that every moment is an opportunity for her son's self-expression. Their bond, transcending conventional norms, creates an atmosphere of acceptance and understanding that permeates every corner of their home.
In an interview, Carol said Bahati fell sick one day and eventually developed cerebral palsy. Life took an arduous turn for her family thereafter.
"My husband grappled with denial, a struggle that culminated in his passing," she said.
She was shaken by the bereavement but resolved to emerge stronger, recognising the need to advocate for greater awareness and acceptance of neurodiversity.
"Motivated by the belief that sharing our story could prevent other families from enduring similar hardships, I founded 'Smile for Neurodiversity'," she said.
This organisation has since become a platform that dispels misconceptions, eradicates stigma and provides crucial support for those navigating the complexities of neurodiverse conditions.
"In the face of adversity, my commitment to promoting understanding and fostering a compassionate society for individuals like Bahati remains unwavering," Carol says.
Carol is now a beacon of strength as she shares stories of hope and triumph through her organisation.
Founded amidst her own challenges, Smile for Neurodiversity is not just a support network but a lifeline for families navigating the complex world of neurodiversity.
Carol extends practical advice and a sense of community to others facing similar struggles.
In the evenings, as the sun sets over Kawangware, Carol tirelessly advocates for the acceptance of neurodiverse individuals.
She engages with the community, fostering open conversations that dismantle the walls of stigma surrounding conditions like autism, ADHD and intellectual disabilities. Through her efforts, ignorance transforms into understanding and judgment evolves into empathy.
In Ruaka, the sun paints the sky with hues of orange and pink, illuminating the world of Gloria Mokua, a 17-year-old girl, and her father, Elijah Nyaigoti. Their bond transcends the challenges posed by neurodiversity, proving that with love and acceptance, any obstacle can be overcome.
Elijah, a pillar of support for Gloria, understands the importance of community understanding. Together, they navigate the intricacies of neurodiversity, demonstrating that with determination and love, every individual can thrive.
Dr Carol Mbogo from Mater Hospital, a dedicated professional, sheds light on the hurdles faced by parents like Carol and Elijah. In her daily interactions, she emphasises the need for open communication, breaking down the barriers of stigma that often surround neurodiversity. Dr Mbogo's commitment extends beyond medical support, acknowledging the emotional and community aspects that are integral to the well-being of neurodiverse individuals and their families.
Elisha Mutsotso, an assistant occupational therapist, advocates a personalised approach. In his world, every individual is a unique puzzle, and his role is to help them find their perfect fit. Through routines for improved sleep and therapies for enhanced social interactions, Elisha aims to unravel the potential within each person, celebrating neurodiversity as a beautiful aspect of human cognition.
The Ministry of Health in Kenya and the World Health Organisation (WHO) provide alarming statistics: about 1 in 68 individuals in Kenya grapples with neurodiverse conditions, including autism, ADHD and intellectual disabilities. This stark reality underscores the urgent need for specialised care and dedicated research to support these individuals and their families.
As the day unfolds in Nairobi and its surrounding areas, the stories of resilience, hope and determination weave a rich tapestry. These narratives, filled with the tangible experiences of individuals like Carol and Elijah and insights from healthcare professionals, behove us to embrace neurodiversity not as a hindrance but as a unique expression of human potential.
In the quiet corners of Kawangware, Ruaka and healthcare institutions like Mater Hospital, the journey through neurodiversity unfolds. It is a journey paved with challenges but illuminated by the resilience, hope and untapped potential of every individual. In understanding, advocating and collaborating, we can transform Nairobi and the world into a place where neurodiversity is not just accepted but celebrated — a testament to the richness of the human experience.